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03. oktobar – Za liječenje bliznakinja godišnje pola miliona eura

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Sedamnaestogodišnjim bliznakinjama Ivi i Jani Vujisić, koje su u našoj zemlji jedine oboljele od Morkijevog sindroma, rijetke bolesti kod koje se osim niskog rasta javlja kontraktura zglobova i njihova loša ili ograničena pokretljivost, država je omogućila neophodnu terapiju za koju će godišnje izdvajati više od pola miliona eura. Njihova majka Slavica Vujisić kaže da su presrećni, te da očekuju da će Iva i Jana već naredne sedmice u bolnici primiti prvu dozu lijeka. – U Ministarstvu zdravlja riješili su sve. Sada samo Montefarm mora da vidi sa proizvođečem lijeka kada će stići. Očekujemo da će terapija popraviti njihovo stanje, prije svega da zaustavi progresiju bolesti, ali i uticati na bolji hod, disanje, da se smanje naslage taloga na kičmenim pršljenovima – navela je Vujisić, pojasnivši da će njene kćerke lijek koji se daje intravenozno uzimati jednom sedmično do kraja života.

Svjetlo na kraju tunela pojavilo se kada je prije četiri godine pronađen lijek vimizim koji predstavlja enzimsku terapiju, a koju je 28. aprila 2014. odobrila Evropska komisija za ljekove za tretiranje Morkijevog sindroma. Taj lijek može da olakša tegobe pacijenata i zaustavi dalju progresiju. Slavica Vujisić zahvalila je nadležnima, posebno prof. dr Vesni Miranović, pomoćnici ministra zdravlja, koja je, kako kaže, prije godinu obećala njenim djevojčicama da će sve učiniti da dobiju lijek, i to obećanje uz podršku ministra i ispunila. Ona je poručila svima čije dijete boluje od nekih rijetkih bolesti da ne odustaju.

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  • Published: 29 days ago on Novembar 12, 2018
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  • Last Modified: Novembar 12, 2018 @ 7:03 am
  • Filed Under: oktobar 2018
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  • VII Medical Fair Podgorica 27–29. september 2018, Hotel Hilton CG

     

     

    MedicalCG magazine organizes VII Medical Fair in Podgorica, at the Hilton Hotel, from September 27th to 29st this year.

     

    We are pleased to have an active participation of the Ministry of Health, sponsors of the Fair, which, with the participation of the most important health institutions, traditional collaborators of the MedicalCG project (Institute for Public Health, Health Insurance Fund, Agency for Medicinal and Medical Funds, KCCG), general hospitals and health centers, as well as pharmaceutical companies and wholesalers, without whose support and cooperation the entire Medical project would not exist – gives us the real basis that the overall quality of the event will satisfy the expectations of both the expert and the general public.
     
    Certification of participation in the event is performed by the Medicine and Pharmaceutical Chamber of Montenegro.
     
    At the previously held five fairs, an average of 70 professional lectures were organized, with about 50 stand presenting presentations from the health and pharmaceutical milieu of Montenegro, the surrounding countries and several foreign participants.

     
    At the fair, professional lectures are organized in two purpose-equipped auditoriums, while stand presentations of health institutions, public and private health institutes, pharmaceutical companies and wholesalers, take place in the Crystal Hall.
     
    The deadline for applying for the lecture is September 20th, 2018. Applications received after the deadline can not enter the official Fair Program because the program is published on September 21st in the MedicalCG magazine, as well as a special publication that is delivered to many addresses. For late lecture applications, we will print out the appendix to the Fair Program, and distribute it just before and during the event.
     
    The lecture application is in addition to this notice.
     
    We expect your participation in the 7th Medical Fair

     

    Respectfully,

    Manager of the Fair
    Slavica Pantelić
    Magazin Medical CG
    Medical d.o.o.
    Info :
    Tel/fax: 020 238 841
    Mob.tel.: 067 803 697
    redakcija@medicalcg.me

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